The impacts of a driving ban: A socio-legal empirical analysis of the everyday experiences of people living with epilepsy in Finland

Marja Lönnroth; Iina Järvinen; Minni Teerikangas; Mervi Issakainen; Elisa Tiilikainen; Anna Mäki-Petäjä-Leinonen; Kaijus Ervasti

doi:10.35295/osls.iisl.2576

Autores

Marja Lönnroth University of Helsinki, Department of Social Sciences/University of East Finland, Law Schol https://orcid.org/0009-0007-9226-7480
Iina Järvinen University of Eastern Finland https://orcid.org/0000-0003-2572-5166
Minni Teerikangas University of Eastern Finland
Mervi Issakainen University of Eastern Finland, Law School https://orcid.org/0000-0001-7471-2148
Elisa Tiilikainen University of Eastern Finland, Department of Social Sciences https://orcid.org/0000-0002-3947-6036
Anna Mäki-Petäjä-Leinonen University of Eastern Finland, Law School https://orcid.org/0000-0001-7142-3498
Kaijus Ervasti University of Eastern Finland https://orcid.org/0000-0001-9114-7179

DOI:

https://doi.org/10.35295/osls.iisl.2576

Palavras-chave:

Epilepsy, Driving ban, Socio-legal Studies, Impacts of Law, Law and Society, epilepsy and law, access to justice

Resumo

This qualitative study explores the impact of driving ban legislation on individuals with epilepsy in Finland, focusing on how these limitations affect their everyday life. We do this by empirically analysing material from qualitative interviews, examining the experiences of individuals who have had a driving ban imposed on them. The findings reveal that driving is perceived as a crucial aspect of autonomy and identity, with significant implications for daily life and social participation. The study highlights the rigidity of current legislation regarding driving bans, which often fails to consider individual circumstances, leading to feelings of frustration and unequal opportunities. Recommendations include improving communication about legal guidelines, providing tailored support and enhancing access to alternative transportation services. This research contributes to the understanding of how driving restrictions intersect with broader socio-legal barriers, advocating for more inclusive policies that better support the mobility rights of individuals living with epilepsy.

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Biografia do Autor

Marja Lönnroth, University of Helsinki, Department of Social Sciences/University of East Finland, Law Schol

Marja Lönnröth (DSocSci) is a social psychologist working as a university lecturer at the University of Helsinki. Her research interests touch upon themes such as intersectional constructions of inclusions, exclusions and negotiations of marginalised identities, as well as gendered understandings linked to care, ageing and illness.

Iina Järvinen , University of Eastern Finland

Postdoctoral Researcher at the University of Eastern Finland. With a background in public law and fundamental rights research, she specializes in themes related to inequality from a socio-legal perspective. Currently, she studies societal participation and the realization of fundamental rights among marginalized and minoritized groups.

Minni Teerikangas, University of Eastern Finland

PhD researcher in University of Eastern Finland. Her work focuses on elder abuse. She has also participated in several projects concerning realization of rights and health and well-being of various social groups. Email: minni.teerikangas@uef.fi

Mervi Issakainen, University of Eastern Finland, Law School

Mervi Issakainen (DSocSci) is a social psychologist working as a senior researcher at the University of Eastern Finland. She has explored issues related to health, well-being and the realisation of rights for people of different ages in several multidisciplinary research projects. She is a member of the Neuro-ethics and law research team (UEF) that focuses on the research related to legal status and legal protection of people with brain diseases and other disabilities. Email: mervi.issakainen@uef.fi

Elisa Tiilikainen, University of Eastern Finland, Department of Social Sciences

Elisa Tiilikainen is a Professor of Social Work at University of Eastern Finland. Her work includes research and teaching regarding questions related to social gerontology and gerontological social work. Currently Tiilikainen is a PI in research projects focusing on older men’s driving cessation and social work practices when working with complex family relations of older adults. Email: elisa.tiilikainen@uef.fi

Anna Mäki-Petäjä-Leinonen, University of Eastern Finland, Law School

Anna Mäki-Petäjä-Leinonen is Professor of Law and Ageing at the University of Eastern Finland. Her research focuses on Elder Law combining jurisprudence with social and medical sciences. Currently Mäki-Petäjä-Leinonen co-leads the Neuro-Ethics and Law research team, which is part of the university’s multidisciplinary Neuroscience research community. Email: anna.maki-petaja-leinonen@uef.fi

Kaijus Ervasti, University of Eastern Finland

Kaijus Ervasti LL.D. is professor of Law and Society at the University of Eastern Finland. He is one of the leading Law and society and access to justice researchers in the Nordic countries. Email: kaijus.ervasti@uef.fi

Referências

Adler, G., and Rottunda, S., 2006. Older adults’ perspectives on driving cessation. Journal of Aging Studies [online], 20(3), 227-235. Available at: https://doi.org/10.1016/j.jaging.2005.09.003 DOI: https://doi.org/10.1016/j.jaging.2005.09.003

Anselme, D., et al., 2022. Knowledge and attitudes of driving license applicants and instructors about driving of patients with epilepsy in Burkina Faso. Acta Epileptologica [online], 4(3), 1-7. Available at: https://doi.org/10.1186/s42494-021-00072-y DOI: https://doi.org/10.1186/s42494-021-00072-y

Bauer, M. J., Rottunda, S., and Adler, G., 2003. Older women and driving cessation. Qualitative Social Work [online], 2(3), 309-325. Available at: https://doi.org/10.1177/14733250030023006 DOI: https://doi.org/10.1177/14733250030023006

Bener, A., et al.,1996. The effect of epilepsy on road traffic accidents and casualties. Seizure [online], 5, 215-219. Available at: https://doi.org/10.1016/S1059-1311(96)80039-2 DOI: https://doi.org/10.1016/S1059-1311(96)80039-2

Beran, R. G., 2008. Epilepsy and law. Epilepsy & Behavior [online], 12(4), 644-651. Available at: https://doi.org/10.1016/j.yebeh.2007.12.006 DOI: https://doi.org/10.1016/j.yebeh.2007.12.006

Beran, R. G., Ainley, L. A. E., and Beran, M. E., 2007. Opinions, attitudes, and practices of Australian neurologists with regard to epilepsy and driving. Internal Medicine Journal [online], 37, 251-257. Available at: https://doi.org/10.1111/j.1445-5994.2007.01331.x DOI: https://doi.org/10.1111/j.1445-5994.2007.01331.x

Beran, R. G., Devereaux, J. A., and Buchanan, D., 2020. Some legal aspects of epilepsy. Epilepsy & Behavior [online], 111, 107244. Available at: https://doi.org/10.1016/j.yebeh.2020.107244 DOI: https://doi.org/10.1016/j.yebeh.2020.107244

Black, A. B., 2001. Epilepsy and driving: The perspective of an Australian neurologist. Medicine and Law [online], 20(4), 553-568.

Bury, M. R., 1982. Chronic illness as biographical disruption. Sociology of Health and Illness [online], 4(2), 167-82. Available at: https://doi.org/10.1111/1467-9566.ep11339939 DOI: https://doi.org/10.1111/1467-9566.ep11339939

Cappelletti, M., and Garth, B., 1978. Access to justice: The newest wave in the worldwide movement to make rights effective. Buffalo Law Review, 27(2),181-292.

Caruana, P., et al., 2018. Australian driving restrictions: How well do neurologists know them? Internal Medicine Journal [online], 48(9), 1144-1149. Available at: https://doi.org/10.1111/imj.14026 DOI: https://doi.org/10.1111/imj.14026

Cervero, R., Sandoval, O., and Landis, J., 2002. Transportation as a stimulus of welfare-to-work: Private versus public mobility. Journal of Planning Education and Research [online], 22(1), 50-63. Available at: https://doi.org/10.1177/0739456X0202200105 DOI: https://doi.org/10.1177/0739456X0202200105

Erlich, E., 2019. Fundamental principles of the sociology of law. 4th printing. New Brunswick: Transaction. (Originally published in 1936).

Ewick, P., and Silbey, S., 1998. The common place of law: Stories from everyday life [online]. University of Chicago Press. Available at: https://doi.org/10.7208/chicago/9780226212708.001.0001 DOI: https://doi.org/10.7208/chicago/9780226212708.001.0001

Farber, S., and Paez, A., 2009. My car, my friends, and me: A preliminary analysis of automobility and social activity participation. Journal of Transport Geography [online], 17(3), 216-225. Available at: https://doi.org/10.1016/j.jtrangeo.2008.07.008 DOI: https://doi.org/10.1016/j.jtrangeo.2008.07.008

Hafner, J., et al., 2014. Impact of new regulations on assessing driving status (INROADS): A South Australian clinic cohort. Journal of Clinical Neuroscience [online], 21(11), 1920-1923. Available at: https://doi.org/10.1016/j.jocn.2014.03.028 DOI: https://doi.org/10.1016/j.jocn.2014.03.028

Hoffman Snyder, C., 2005. Dementia and driving: Autonomy versus safety. Journal of the American Association of Nurse Practitioners [online], 17(10), 393-402. Available at: https://doi.org/10.1111/j.1745-7599.2005.00070.x DOI: https://doi.org/10.1111/j.1745-7599.2005.00070.x

Issakainen, M., et al., 2024. Access to justice in the light of everyday problems and prejudice: A pilot study on the experiences of people with epilepsy in Finland. Seizure: European Journal of Epilepsy [online], 120, 189-193. Available at: https://doi.org/10.1016/j.seizure.2024.07.011 DOI: https://doi.org/10.1016/j.seizure.2024.07.011

Järvinen, I., et al., 2026. Barriers to recognition in the lives of people with epilepsy: A socio-legal perspective. European Journal of Empirical Legal Studies [online], 3(1). Available at: https://doi.org/10.62355/ejels.63019 DOI: https://doi.org/10.62355/ejels.63019

Kälviäinen, R., et al., eds., 2016. Epilepsia. Helsinki: Duodecim.

Krumholz, A., Hopp, J. L., and Sanchez, A. M., 2016. Counseling epilepsy patients on driving and employment. Neurologic clinics, 34(2), 427-442.

Krumholz, A., Hopp, J. L., and Sanchez, A. M., 2016. Counselling epilepsy patients on driving and employment. Neurologic Clinics [online], 34(2), 427-442. Available at: https://doi.org/10.1016/j.ncl.2015.11.005 DOI: https://doi.org/10.1016/j.ncl.2015.11.005

Liddle, J., et al., 2014. Managing driving issues after an acquired brain injury: Strategies used by health professionals. Australian Occupational Therapy Journal [online], 61(4), 215-223. Available at: https://doi.org/10.1111/1440-1630.12119 DOI: https://doi.org/10.1111/1440-1630.12119

Marottoli, R., et al., 2000. Consequences of driving cessation: Decreased out-of-home activity levels. The Journals of Gerontology: Series B [online], 55(6), S334-S340. Available at: https://doi.org/10.1093/geronb/55.6.S334 DOI: https://doi.org/10.1093/geronb/55.6.S334

Möller, L., et al., 2023. Driving regulation for epilepsy in Europe. Seizure: European Journal of Epilepsy [online], 109, 83-91. Available at: https://doi.org/10.1016/j.seizure.2023.05.016 DOI: https://doi.org/10.1016/j.seizure.2023.05.016

Mulcahy, L., Lawn, N., and Dunne, J. ,2025. Navigating the road ahead: Assessing international guidelines for commercial drivers with epileptic seizures. Epilepsy & Behavior [online], 164, 110287. Available at: https://doi.org/10.1016/j.yebeh.2025.110287 DOI: https://doi.org/10.1016/j.yebeh.2025.110287

Musselwhite, C. B. A., and Shergold, I. ,2013. Examining the process of driving cessation in later life. European Journal of Ageing [online], 10, 89-100. Available at: https://doi.org/10.1007/s10433-012-0252-6 DOI: https://doi.org/10.1007/s10433-012-0252-6

Naik, P. A., et al., 2015. Do drivers with epilepsy have higher rates of motor vehicle accidents than those without epilepsy? Epilepsy & Behavior [online], 47, 111-114. Available at: https://doi.org/10.1016/j.yebeh.2015.04.016 DOI: https://doi.org/10.1016/j.yebeh.2015.04.016

Nishida, T., Kawai, K., and Tachimori, H., 2020. Seizure. European Journal of Epilepsy [online], 76, 110-115. Available at: https://doi.org/10.1016/j.seizure.2020.02.002 DOI: https://doi.org/10.1016/j.seizure.2020.02.002

Obstbaum, Y., et al., 2025. “Are you able to walk? Asked the bank clerk.” Everyday legal problems and access to justice from the perspective of older people. Journal of Aging Studies [online], 75, 101377. Available at: https://doi.org/10.1016/j.jaging.2025.101377 DOI: https://doi.org/10.1016/j.jaging.2025.101377

Patomella, A. H., Johansson, K., and Tham, K., 2009. Lived experience of driving ability following stroke. Disability and Rehabilitation [online], 31, 9, 726-733. Available at: https://doi.org/10.1080/09638280802306539 DOI: https://doi.org/10.1080/09638280802306539

Perr, I. N., 1958. Epilepsy and the law. Cleveland-Marshall Law Review, 7(2), 280-301.

Pound, R., 1910. Law in books and law in action. American Law Review, 44, 12-36.

Rawls, J., 1968. Distributive justice: Some addenda. Natural Law Forum [online], 13(1), 51-71. Available at: https://doi.org/10.1093/ajj/13.1.51 DOI: https://doi.org/10.1093/ajj/13.1.51

Savoie, C., et al., 2024. Transition from driving to driving cessation: Experience of older persons and caregivers: A descriptive qualitative design. BMC Geriatrics [online], 24, 219. Available at: https://doi.org/10.1186/s12877-024-04835-3 DOI: https://doi.org/10.1186/s12877-024-04835-3

Siren, A., and Hakamies-Blomqvist, L., 2005. Sense and sensibility. A narrative study of older women’s car driving. Transportation Research Part F: Traffic Psychology and Behaviour [online], 8(3), 213-228. Available at: https://doi.org/10.1016/j.trf.2005.04.008 DOI: https://doi.org/10.1016/j.trf.2005.04.008

Stepney, M., et al., 2018. A licence to drive? Neurological illness, loss and disruption. Sociology of Health & Illness [online], 40(7), 1186-1199. Available at: https://doi.org/10.1111/1467-9566.12754 DOI: https://doi.org/10.1111/1467-9566.12754

Taylor, J., Chadwick, D., and Johnson, T., 1996. Risk of accidents in drivers with epilepsy. Journal of Neurology, Neurosurgery & Psychiatry [online], 60(6), 621-627. Available at: https://doi.org/10.1136/jnnp.60.6.621 DOI: https://doi.org/10.1136/jnnp.60.6.621

Tedrus, G. M. A. S., et al., 2010. Factors associated with the employment situation and driving license of patients with epilepsy. Journal of Epilepsy and Clinical Neurology [online], 16(4), 136-142. Available at: https://doi.org/10.1590/S1676-26492010000400004 DOI: https://doi.org/10.1590/S1676-26492010000400004

Traficom, 2021. Ajoterveyden arviointiohjeet terveydenhuollon ammattilaisille. Ohje 251562/03.04.03.06/2021.

Vera-González, A., 2022. Pathophysiological mechanisms underlying the etiologies of seizures and epilepsy. In: S. J. Czuczwar, ed., Epilepsy [online]. Brisbane: Exon. Available at: https://doi.org/10.36255/exon-publications-epilepsy-pathopysiology DOI: https://doi.org/10.36255/exon-publications-epilepsy-pathopysiology

Willems, L. M., et al., 2019. Noncompliance of patients with driving restrictions due to uncontrolled epilepsy. Epilepsy & Behavior [online], 91, 86-89. Available at: https://doi.org/10.1016/j.yebeh.2018.04.008 DOI: https://doi.org/10.1016/j.yebeh.2018.04.008

Winston, G., and Jaiser, S. R., 2012. Western driving regulations for unprovoked first seizures and epilepsy. Seizure [online], 21(5), 371-376. Available at: https://doi.org/10.1016/j.seizure.2012.03.008 DOI: https://doi.org/10.1016/j.seizure.2012.03.008